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Notable Links:
Hospice Foundation of America
Michigan Hospice & Palliative Care 
National Hospice & Palliative Care Ogranization (NHPCO)
Growth Through Loss & Love

Organizations

 | A | B | C | D | E | F | G | I | L | M | N | O | P | R | S | T | V | W

  • AIDS Information Network 

  • 1211 Chestnut Street, 7th Floor, Philadelphia, PA 19107 
    (215) 575-1110, Library extension 131 
    email
    AIDS Information Network has projects related to education and prevention of HIV/AIDS and maintains a comprehensive multi-media, multi-lingual collection of over 100,000 items related to HIV/AIDS. Information requests are answered by professional staff on site, or via telephone, fax, mail or e-mail. 
     
  • Air Crash Support Network 

  • 1594 York Ave Box 22, New York, NY 10028 
    1-877-ACSN-HELP 
    The Air Crash Support Network (ACSN) is a national non-political, non-profit, tax-exempt organization established to aid and facilitate the grieving process of people who have been affected by or involved in an air crash. 
     
  • ALS Association National Office 

  • 27001 Agoura Road, Suite 150 Calabasas Hills, CA 91301 
    800-782-4747 
    The Amyotrophic Lateral Sclerosis (ALS) Association is dedicated to the fight against ALS, commonly referred to as Lou Gehrig's disease. The Association is a national information resource on ALS, funding research and providing referrals for counseling, training and support. 
     
  • Alzheimer's Association 

  • 919 N. Michigan Avenue, Suite 1000, Chicago, IL 60611-1676 
    (800) 272-3900 
    The Alzheimer's Association is the only national voluntary organization dedicated to conquering Alzheimer's disease through research, and through providing education and support to people with Alzheimer's disease, their families, and caregivers. The association sends out general information about the disease and caregiving responsibilities and refers callers to their local chapter where they can get support group information and find out about resources in their area. 
     
  • American Association on Mental Retardation (AAMR) 

  • 444 North Capitol Street, NW, Suite 846, Washington, DC 20001 
    (800) 424-3688 or (202) 387-1968 
    e-mail
    The AAMR is a professional organization that advances the knowledge and skills of individuals in the field of mental retardation and related developmental disabilities through the exchange of information and ideas. The Association strives to enhance the life opportunities of people with mental retardation and their families, and promote public policies, research and services. 
     

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  • American Association of Pastoral Counselors 

  • 9504A Lee Highway, Fairfax, VA 22031-2303 
    (703) 385-6967 
    The American Association of Pastoral Counselors (AAPC) was organized in 1963 to promote and support the ministry of pastoral counseling within religious communities and the field of mental health in the United States and Canada. 
     
  • AARP 

  • 601 E Street, NW, Washington, DC 20049 
    (202) 434-2277 
    AARP is the nation's leading organization for people 50 and older. AARP serves their needs through information and education, advocacy, and community services provided by a network of local chapters and experienced volunteers throughout the country. The organization also offers members a wide range of special benefits and services, including Modern Maturity magazine and the monthly AARP Bulletin. Click here to go directly to AARP's Coping With Grief and Loss.
     
  • Americans for Better Care of the Dying 

  • 4125 Albemarle St., NW, Suite 210, Washington, DC 20016 
    (202) 895-9485 
    e-mail
    Americans for Better Care of the Dying (ABCD) is a non-profit charity dedicated to social, professional, and policy reform and education aimed at improving services for patients with serious illness and their families. ABCD aims to: enhance the experience of the last phase of life for all Americans; advocate for the interests of patients and families; improve communication between providers and patients; involve society in end-of-life care; control pain and other symptoms; demand continuity in service systems for the seriously ill; and limit the emotional and financial toll on families. 
     
  • American Brain Tumor Association 

  • 2720 River Road, Suite 146, Des Plaines, IL 60018 
    (800) 886-2282 or (847) 827-9910 
    e-mail
    The American Brain Tumor Association (ABTA) is an independent, not-for-profit organization founded in 1973. Services include over 20 publications which address brain tumors, their treatment, and coping with the disease; nationwide resource listings of brain tumor support groups and physicians offering investigative treatments; Connections pen-pal program; a national biennial brain tumor symposium for patients and their families; and free social service consultations. ABTA also sponsors regional Town Hall meetings across the country which focus on state-of-the-art treatment options. A tri-annual newsletter, the Message Line, describes those research advances as well as other ABTA activies. Services are provided free to patients and their families. 
     
  • American Cancer Society 

  • 1599 Clifton Road, NE, Atlanta, GA 30329-4251 
    (800) ACS-2345 
    The American Cancer Society is the nationwide, community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer through research, education, advocacy, and service.  An additional service provided by the American Cancer Society is the Cancer Survivors Network, an online community for survivors and caregivers where they can find support and share information, go to http://www.acscsn.org
     
  • American Geriatrics Society's Foundation for Health in Aging (FHA)

  • The FHA builds a bridge between the research and practice of geriatrics health care professionals and the public and advocates on behalf of older adults and their special needs: wellness and preventive care, self-responsibility and independence, and connections to the family and community. 
     
  • American Heart Association 

  • 7272 Greenville Avenue, Dallas, TX 75231 
    (214) 373-6300 or (800)AHA-USA1 to be connected to closest affiliate in area 
    The American Heart Association is one of the world's premier health organizations committed to reducing disability and death from cardiovascular diseases and stroke. 
     
  • American Liver Foundation 

  • 1425 Pompton Avenue, Cedar Grove, NJ 07009 
    (800) 223-0179 
    e-mail
    A national non-profit organization dedicated to preventing, treating, and curing hepatitis and other liver and gallbladder diseases through research and education. 
     

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  • American Lung Association 

  • 1740 Broadway, New York, NY 10019-4374 
    (212) 315-8700 or (800) LUNG-USA 
    e-mail
    The mission of the American Lung Association is to prevent lung disease and promote lung health with a nationwide highest priority on asthma. The American Lung Association has been fighting lung disease for more than 90 years, providing programs of education, community service, advocacy and research. 
     
  • American Parkinson Disease Association, Inc. 

  • 1250 Hylan Boulevard, Suite 4B, Staten Island, NY 10305-1946 
    (800)223-2732 or (718) 981-8001 
    e-mail
    APDA is a not-for-profit voluntary health agency committed to serving the Parkinson community through a comprehensive program of research, education, and support, offering educational booklets and supplements, symposiums, and referrals to support groups, local chapters, and physicians specializing in Parkinson's disease throughout the United States. 
     
  • American Pain Foundation

  • A grassroots, consumer-driven, patient-focused organization dedicated to promoting better pain management by providing practical information for patients, raising public awareness and understanding of pain, and advocating against barriers to effective treatment. 
     
  • American Trauma Society

  • 8903 Presidential Parkway, Suite 512, Upper Marlboro, MD 20772 
    (800)556-7890 or (301)420-4189 
    e-mail
    The American Trauma Society is a nationwide, non-profit, voluntary organization dedicated to the prevention of trauma and improvement of trauma care. 
     
  • Association of Asian Pacific Community Health Organizations (AAPCHO) 

  • 1440 Broadway, Suite 510, Oakland, CA 94612 
    (510) 272-9536 
    e-mail
    AAPCHO is a national association representing community health organizations dedicated to improving the health status of Asians and Pacific Islanders (APIs) in the United States and its territories, especially the medically underserved. AAPCHO advocates for policies and programs that will improve the provision of health care services that are community driven, financially affordable, linguistically accessible, and culturally appropriate. AAPCHO offers technical assistance and training for medically underserved API communities. 
     
  • Association for Clinical Pastoral Education 

  • 1549 Clairmont Road, Suite 103, Decatur, GA 30033 
    (404) 320-1472 
    The ACPE mission is to foster experienced-based theological education which combines the practice of pastoral care with qualified supervision and peer group reflection and which is grounded in a person-centered approach to religious ministry. 
     
  • Association for Death Education and Counseling 

  • 638 Prospect Avenue, Hartford, CT 06105 
    (860) 586-7503 
    ADEC is dedicated to improving the quality of death education and death-related counseling and caregiving; to promoting the development and interchange of related theory and research; and to providing support, stimulation, and encouragement to its members and those studying and working in death-related fields. 
     
  • Association of Clinicians for the Underserved

  • ACU National Office, 501 Darby Creek Rd., Suite 20, Lexington, KY 40509 
    (859) 263-0046 
    email: acu@clinicians.org
    The Association of Clinicians for the Underserved (ACU) is a non-profit, multi-disciplinary organization established by National Health Service Corps (NHSC) alumni, providers, and scholars. The mission of the ACU is to improve the health of underserved populations by enhancing the development and support of health care clinicians serving these populations through information, networking, education, research, recognition and advocacy. 

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  • BenefitsCheckUp.org

  • Created by the National Council on Aging, BenefitsCheckUp.org is a free, easy-to-use service that identifies federal and state assistance programs for older Americans.  This site can help older adults to quickly identify programs that may improve the quality of their lives.  Family and friends can also obtain facts about benefits that their loved ones may qualify for. 
     

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  • Candlelighters Childhood Cancer Foundation 

  • 7910 Woodmont Avenue, Suite 460, Bethesda, MD 20814-3015 
    (800) 366-2223 
    CCCF provides support, information, and advocacy to families of children with cancer (at any stage of the illness or who are bereaved), to professionals in the field, and to adult survivors, through local groups, newsletters, and other services. 
     
  • Children's Hospice International 

  • 901 N. Pitt St., Ste. 230, Alexandria, VA 22314
    (703) 684-0330 or (800) 24-CHILD 
    e-mail
    Children's Hospice International creates a world of hospice support for children, providing medical and technical assistance, research, and education for these special children, their families and health care professionals. CHI works with hospices, children's hospitals, homecare agencies and other individuals and organizations to assist them in better caring for children with life-threatening conditions. 
     
  • The Compassionate Friends, Inc. 

  • P.O. Box 3696, Oak Brook, IL 60522-3696 
    (630) 990-0010 or (877) 969-0010 
    The Compassionate Friends is a self-help organization whose purpose is to offer friendship and understanding to parents and siblings following the death of a child. They have 580 chapters nationwide which provide monthly meetings, phone contacts, lending libraries and a local newsletter. The national organization provides newsletters, distributes grief-related materials, and answers requests for referrals and information. 
     
  • Consumer Consortium on Assisted Living

  • P.O. Box 3375, Arlington, VA 22203 
    (703) 841-2333 
    CCAL is a national consumer-focused organization dedicated to representing the needs of residents in assisted living facilities and educating consumers, professionals, and the general public about assisted living issues.  Provides tools to help consumers to make informed choices including a checklist for evaluating assisted living facilities. 
  • Cystic Fibrosis Foundation 

  • 6931 Arlington Road, Bethesda, MD 20814 
    (800) 344-4823 
    The mission of the Cystic Fibrosis Foundation (CFF) is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. 

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  • The Dougy Center 

  • P.O. Box 86582, Portland, OR 97286 
    (503) 775-5683 
    e-mail
    The Dougy Center, The National Center for Grieving Children and Families, provides support groups for grieving children that are age specific (3-5, 6-12, teens) and loss specific (parent death, sibling death, survivors of homicide/violent death, survivors of suicide). The Center is in the process of publishing a series of guidebooks based on what they've learned from the children they have served. Titles include Helping Children Cope With Death and Helping Teens Cope With Death. Additional services that include national trainings, consultations to schools and organizations, crisis-line information, and referrals. 
     
  • DyingWell.org 

  • DyingWell.org produces resources for people facing lef-limiting illness, their families, and their professional caregivers.  Led by Dr. Ira Byock, DyingWell.org works to define wellness through the end of life. 

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  • Eldercare Locator

  • National Association of Area Agencies on Aging
    927 15th St., NW, 6th Floor, Washington, DC 20005 
    Provides referrals to Area Agencies on Aging via zip code locations.  Offers information about many eldercare issues and services in local communities. 

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  • Family Caregiver Alliance

  • 690 Market St., Suite 600, San Francisco, CA 94104 
    (415) 434-3388 or (800) 445-8106 (CA residents only) 
    FCA is a nationally recognized information center on long-term care and the lead agency in California's system of Caregiver Resource Centers. FCA serves as a public voice for caregivers, illuminating the daily challenges they face, offering them assistance and championing their cause through education, services, research and advocacy. 
  • Final Thoughts

  • Your web resource for estate and end of life planning. 
     
  • Foundation for Health in Aging (FHA)

  • 350 Fifth Avenue, Suite 801, New York, NY 10118
    Ph: 212-755-6810
    The FHA builds a bridge between geriatrics health care professionals and the public; they advocate on behalf of older adults and their special needs through public education, clinical research, and public policy. The FHA web site provides information for older adults, their families,and caregivers.

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  • Gay Men's Health Crisis 

  • 129 W. 20th Street, New York, NY 10011 
    (212) 807-6665 or (800) AIDS-NYC 
    Gay Men's Health Crisis is the nations oldest and largest AIDS service organization and is a model for AIDS care, education, and advocacy world wide. GMHC offers a multitude of support services, including legal assistance, nutritional counseling, family services and crisis intervention. GMHC sponsors a AIDS Hot Line number, (212) 807-6655. Operators provide free one-on-one counseling, answer questions, provide referrals and guidance. 
     
  • Gilda's Club 

  • 195 W. Houston Street, New York, NY 10014 
    (212) 647-9700 
    Gilda's Club is a psychosocial support community for people with cancer, their families and friends, offering support, meditation and networking groups, pot-luck suppers, and social events. Everything is entirely free. There are special programs for children whose parents or family members have cancer or who have cancer themselves. Have ten affiliates across the United States, Canada and London. They have How-To-Start kits if anyone is interested in starting a Gilda's Club in their community. 
     
  • The Grotta Foundation for Senior Care

  • (973) 761-4900 
    Grotta1@aol.com
     
  • Growth House 

  • e-mail
    The mission of Growth House, Inc., is to improve the quality of compassionate care for people who are dying, through public education about hospice and home care, palliative care, pain management, death with dignity, bereavement, and related issues. This award-winning web site offers the net¹s most extensive directory of reviewed resources for life-threatening illness and end-of-life care. Growth House offers a free monthly e-mail newsletter covering new and noteworthy net resources for terminal care, life-threatening illness, and bereavement. Growth House provides the Inter-Institutional Collaborative Network on End Of Life Care, which links major professional organizations internationally. 

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  • In Loving Memory 

  • 1416 Green Run Lane, Reston, VA 
    (703) 435-0608 
    Mutual support, friendship, and help for parents who have lost their only child or all of their children. In Loving Memory hosts a national conference every two years for bereaved parents as well as the professionals who work with them. 
     
  • Innovations in End-of-Life Care

  • This bimonthly, online journal features peer-reviewed promising practices in end-of-life care. Each innovation is selected because it holds promise for enhancing the comfort and dignity of dying persons and their families. Thematic issues spotlight improvements in institutional practice and policies, uncover the process behind these efforts, and offer international perspectives on the topic. 
     
  • Institute for the Study of Health and Illness 

  • P.O. Box 316, Bolinas, CA 94924 
    (415) 868-2642 
    The mission of The Institute for the Study of Health and Illness (ISHI) is to create a new approach to health delivery, a step beyond disease-centered care and patient-centered care called ãrelationship-centered care. ISHI has developed programs that focus on physician training and workshop development, as well as an active consulting and speakers program. 
     
  • Intercultural Cancer Council 

  • 1720 Dryden, Suite C, Houston, TX 77030 
    (713) 798-4617 
    e-mail
    The mission of the Intercultural Cancer Council is to develop and promote policies and programs to assist minorities, culturally diverse, and medically underserved individuals who have higher incidence and lower survival rates from cancer. 
     
  • International Association for Hospice and Palliative Care 

  • Sharing information on hospice and palliative care around the world.
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  • Last Acts National Program Office 

  • 1620 Eye St., NW, Suite 202, Washington, DC 20006 
    (202) 296-8071 
    e-mail
    The goal of Last Acts is to achieve the following: greater awareness of problems in the care of critically ill and dying Americans; greater recognition--by various organizations and groups--of their responsibility to participate in developing and implementing solutions; and increased collaborative activities, information-sharing, and continued engagement in discussion of end-of-life issues. 
     
  • The Leukemia & Lymphoma Society 

  • 1311 Mamaroneck Ave., White Plains, NY 10605 
    (914) 949-5213 or (800) 955-4572 
    Voluntary non-profit health organization to: cure leukemia and it's related cancers - lymphoma, multiple myeloma and Hodgkin's disease - and improve the quality of life of patients and their families. 
     

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  • The Mautner Project for Lesbians with Cancer 

  • 1707 L Street, NW, Suite 500, Washington, DC 20036 
    (202) 332-5536 
    e-mail
    The Mautner Project for Lesbians with Cancer is dedicated to providing direct services and support groups for lesbians, their partners, and caregivers. The project also provides education and information about cancer to the lesbian community, education to health care providers about the special concerns of lesbians with cancer, and advocacy on lesbian health issues in national and local arenas. 
     
  • MEDLINEplus

  • National Institute of Health, National Library of Medicine 
    Bethesda, MD 20894 
    MEDLINEplus, a service of the National Library of Medicine and the National Institutes of Health, offers extensive information on many health topics, as well as, drug information, dictionaries, encyclopedia, clinical trial information, directories, current health news, and numerous resources from the NIH and other government and national resources. 
     
  • Mercy Medical Airlift

  • 4620 Haygood Road Ste. 1 
    Virginia Beach, VA 23455 
    e-mail
    The Angel Flight America national system of free or low-cost, long-distance medical air travel. 
     
  • Multiple Sclerosis Association of America 

  • 706 Haddonfield Rd, Cherry Hill, NJ 08002 
    (800) 833-4672 
    The Multiple Sclerosis Association of America is a national nonprofit health care agency providing direct care services to those with MS. These services include a national toll-free hotline, peer counseling, support groups, therapeutic equipment loan program, educational literature, symptom management therapies and other vital services. 
     

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  • National Association of the Deaf (NAD) 

  • 814 Thayer Avenue, Silver Spring, MD 20910 
    (301) 587-1788 or TTY number (301) 587-1789 
    e-mail: nadinfo@nad.org
    The mission of NAD is to assure that a comprehensive, coordinated system of services is accessible to Americans who are deaf and hard of hearing. Numerous programs and activities are available enabling them to achieve their maximum potential through increased independence, productivity, and integration. 
     
  • National Association of People with AIDS 

  • 1413 K Street, NW, Washington, DC 20036 
    (202)898-0414 
    NAPWA is a national AIDS advocacy group. They provide free publications on treatment and advocacy and have an extensive information and referral department that includes a fax-on-demand system; you can call (202)789-2222 from your fax machine to request information on HIV/AIDS. They also have a health and treatment department that provides up to date treatment information and a free bi-monthly publication, Medical Alert (available in English and Spanish.) 
     
  • National Black Women's Health Project (NBWHP) 

  • 600 Pennsylvania Ave, SE, Suite 310, Washington, DC 20003 
    (202) 543-9311 
    The mission of the NBWHP is to improve the health of Black women through wellness education and services, Self-Help Group development, and health information and advocacy. NBWHP works with individuals and groups at the primary prevention level; NBWHP is also active on the national and international level. There are 16 national chapters and 150 local Self-Help Groups. 
     
  • National Brain Tumor Foundation 

  • 785 Market St., Suite 1600, San Francisco, CA 94103 
    (800) 934-CURE or (415) 284-0208 
    e-mail
    The National Brain Tumor Foundation provides a variety of support and educational services for patients and their families, including booklets, newsletters, support group listings and assistance starting new groups, a toll-free brain tumor information line, the Support Line patient/giver network, and national and regional conferences. 
     
  • National Cancer Institute 

  • 9000 Rockville Pike, 31 Center Dr. - MSC 2580, Bethesda, MD 20892-2580 
    (301) 496-5583 or (800)-422-6237 or TTY number (800) 332-8615 
    The National Cancer Institute (NCI), the largest component of the National Institutes of Health, coordinates a national research program on cancer cause and prevention, detection and diagnosis, and treatment. In addition, NCI's mission includes dissemination of information about cancer to patients, the public, and health professionals, offering the Cancer Information Service (CIS). CIS meets the needs of patients, the public and health professionals through telephone service and an outreach program. Specially trained staff provide the latest scientific information in understandable language. 
     
  • National Coalition for Cancer Survivorship 

  • 1010 Wayne Ave., Silver Spring, MD 20910 
    (301) 650-9127 or (888) 650-9127 
    NCSS is a patient-led advocacy organization working to ensure quality cancer care for all Americans by leading and strengthening the survivorship movement and empowering cancer survivors. 
     
  • National Coalition of Hispanic Health and Human Services Organizations (COSSMHO) 

  • 1501 16th Street, NW, Washington, DC 20036 
    (202) 387-5000 
    e-mail
    COSSMHO is the sole organization focusing on the health, mental health, and human services needs of the diverse Hispanic communities. COSSMHO's membership consists of thousands of front-line health and human services providers and organizations serving Hispanic communities. COSSMHO's services include: consumer education and outreach; training programs; technical assistance; and model community-based programs. 
     
  • National Council on Disability 

  • 1331 F Street, NW, Suite 1050, Washington, DC 20004 
    (202) 272-2004 or TTY number (202) 272-2074 
    The National Council on Disability is the only federal agency charged with addressing, analyzing, and making recommendations on issues of public policy that affect people with disabilties. 
     
  • National Family Caregivers Association 

  • 10605 Concord Street, Suite 501, Kensington, MD 20895 
    (301) 942-6430 or (800) 896-3650 
    e-mail
    The National Family Caregivers Association (NFCA) is a not-for-profit membership organization that supports the family members of persons with chronic illness or disability. NFCA provides information, support, resource referrals, public awareness and advocacy in an effort to minimize the disparity between a caregiver's quality of life and that of mainstream Americans. NFCA offers a bereavement program for former caregivers and is the sponsor of National Family Caregiver's Week celebration. 
     
  • National Federation of Interfaith Volunteer Caregivers 

  • 368 Broadway, Suite 103, Kingston, NY 12401 
    (914) 331-1358 
    e-mail
    The purpose of the National Federation of Interfaith Volunteer Caregivers, Inc. is to promote, in all congregations throughout the United States, the ministry of caregiving to disabled persons and their families without reference to age, gender, race, or religious affiliation. NFIVC provides support and training to start and operate Interfaith Volunteer Caregiving Projects (IVCPs). Through IVCPs, Volunteer Caregivers provide compassionate, one-on-one care to those in need. 
     
  • National Hospice and Palliative Care Organization 

  • 1700 Diagonal Road, Suite 300, Alexandria, VA 22314 
    (703) 837-1500 or (800) 338-8619 
    e-mail
    The National Hospice and Palliative Care Organization (NHPCO) is the oldest and largest public benefit organization in the US devoted exclusively to hospice care. NHPCO operates the Hospice Helpline (1-800-658-8898) to provide the general public and healthcare professionals with information about hospice care, reimbursement sources, as well as referrals to local hospice programs throughout the US NHPCO publishes a variety of brochures on hospice care, grief in the workplace, and bereavement. 
     
  • National Information Center for Children and Youth with Disabilities 

  • P.O. Box 1492, Washington, DC 20013 
    (800) 695-0285, voice and TTY or (202) 884-8200, voice and TTY 
    e-mail
    The National Information Center for Children and Youth with Disabilities is an information and referral center that focuses on young people with disabilities from birth to the age of 22. Publications, referrals, and information concerning other resources are available. 
     
  • National Kidney Foundation 

  • 30 East 33rd St., New York, NY 10016 
    (800) 622-9010 or (212) 889-2210 
    The National Kidney Foundation seeks the means to the prevention of diseases of the kidney and urinary tract, while at the same time ensuring that those now suffering from these diseases receive the finest possible care. The Foundation supports research projects and sponsors a wide variety of community programs in treatment, service, education and prevention. 
     
  • National Parkinson Foundation 

  • 1501 NW 9th Ave., Bob Hope Road, Miami, FL 33136 
    (800) 327-4545 
    The National Parkinson Foundation's mission is fourfold: to find the cause and cure for Parkinson's disease and other allied neurological disorders through research, to provide diagnostic and therapeutic services, to improve the quality of life for patients and caregivers, and to educate people about Parkinson's disease. 
     
  • National Partnership for Women & Families

  • 1875 Connecticut Avenue, NW, Suite 710, Washington, DC 20009 
    202-986-2600 
    The  National Partnership for Women & Families is a nonprofit, nonpartisan organization that uses public education and advocacy to promote fairness in the workplace, quality health care, and policies that help women and men meet the dual demands of work and family. 
  • National Patients Advocates Foundation

  • 753 Thimble Shoals, Suite B, Newport News, VA 23606 
    (800) 532-5274 
    The Patient Advocates Foundation is a national nonprofit organization that serves as an active liaison between patients and their insurer, employer and/or creditors to resolve insurance, job discrimination and/or debt crisis matter relating to patient's conditions. 
  • National Respite Locator Service

  • 800 Eastowne Dr., Suite 105, Chapel Hill, NC 27514 
    (800) 773-5433 
    Helps parents, caregivers, and professionals find respite services in their state and local area.  Information is also available on the National Respite Coalition, working to preserve and promote respite programs and policy. 
  • National Stroke Association 

  • 96 Inverness Dr. East, Suite 1, Englewood, CO 80112-5112 
    (800) STROKES (787-6537) or (303) 649-9299 
    National Stroke Association is the only national non-profit organization dedicating 100 percent of its resources to stroke, including prevention, research, treatment and support for stroke survivors and caregivers. 
     

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  • Office of Minority Health Resource Center 

  • P.O. Box 37337, Washington, DC 20013-7337 
    (800) 444-6472 or TDD number (301) 589-0951 
    The Office of Minority Health Resource Center (OMH-RC) was established to facilitate the exchange of information and strategies to improve the health status of racial and ethnic minorities. The center's mission is to collect and distribute information on the health of Blacks, Hispanics, Asians and Pacific Islanders, American Indians and Alaska Natives. The Resource Persons Network of OMH-RC consists of minority health experts available to provide technical assistance, offer advice, and speak at workshops. OMH-RC publishes a bimonthly newsletter called Closing the Gap. Services are provided at no cost. 
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  • Partnership for Caring: America's Voices for the Dying

  • 1620 I St, NW, Suite 202, Washington, DC 20006 
    (800) 989-9455 
    A nonprofit organization that partners individuals and organization in a powerful collaboration to improve how people die in our society.  Partnership for Caring operates a national crisis and informational hotline dealing with end-of-life issues and provides state-specific living wills and medical powers of attorney. 
     

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  • Resources for Cross Cultural Health Care 

  • 8915 Sudbury Rd., Silver Spring, MD 20901 
    (301) 588-6051 
    Resources for Cross Cultural Health Care is a national network of individuals and organizations in ethnic communities and health care organized to offer technical assistance and information on linguistic and cultural competence in health care. 
     
  • Registry of Interpreters for the Deaf, Inc. (RID) 

  • 333 Commerce St, Alexandria, VA 22314 
    (703) 838-0030 V, (703) 838-0459 TTY 
     
  • Rosetta Life

  • Rosetta Life is an English-based, artist-led organization established to work in hospices to enable the terminally ill and the bereaved to document their lives in whatever artistic form is appropriate. 
     

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  • Self Help for Hard of Hearing People, Inc. (SHHH) 

  • 7910 Woodmont Avenue, Suite 1200, Bethesda, MD 20814 
    (301) 657-2248 or TTY number (301) 657-2249 
    e-mail
    SHHH is a volunteer, international organization of hard of hearing people, their relatives, and friends. It is a nonprofit, non-sectarian educational organization devoted to the welfare and interests of those who cannot hear well. Publishes bimonthly journal, Hearing Loss, as well as publications on all aspects of hearing loss. There are 250 self-help support groups throughout the US. 
     
  • Senior Hospitality - A2Z Senior SuperSite

  • This industry-wide portal features a wide range of resources for retirees and seniors.  Discover the communities and organizations that are serving Seniors (directly and indirectly) in the rapidly growing field of SENIOR HOSPITALITY. 
     
  • The Susan G. Komen Breast Cancer Foundation 

  • 5005 LBJ Freeway, Suite 370, Dallas, TX 75244 
    (972) 855-1600 or (800) 462-9273 
    The Susan G. Komen Breast Cancer Foundation is a non-profit organization with a network of volunteers working through local affiliates, fighting to eradicate breast cancer as a life-threatening disease by advancing research, education, screening, and treatment. The Komen Foundation has a national toll-free Breast Cancer Helpline that provides timely and accurate information to callers with breast health and breast cancer concerns. For answers to questions, local resources, or moral support call (800) I'M AWARE. 
     

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  • Thyroid Cancer Survivors' Association, Inc. (ThyCa)

  • ThyCa is a nonprofit volunteer organization that provides resources and support for thyroid cancer survivors around the world. 
     
  • Tragedy Assistance Program for Survivors, Inc. (TAPS) 

  • 2001 S Street, NW, Suite 300, Washington, DC 20009 
    (800) 959-TAPS 
    e-mail
    TAPS is a national non-profit organization made up of, and providing services at no cost to, all those who have suffered the loss of a loved one in the Armed Forces. The heart of TAPS is its national military survivor peer support network called SurvivorLINK, which links together the families, friends, and coworkers of those who are grieving. TAPS also offers bereavement counseling referral, provides case worker assistance that carries the work of the casualty assistance officers into the future, hosts the nation's only annual National Military Survivor Seminar and Kids Camp, publishes a quarterly journal mailed at no charge to survivors and caregivers, maintains a comprehensive web site, and offers a toll-free crisis and information line available 24 hours a day. 

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  • Volunteer Hospice Network 

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    Rhoda Eagan, Project Leader 
    607 Hawke Street 
    Fredericksburg, VA 22401 
    540-371-2367 
    e-mail

    The Volunteer Hospice Network (VHN) is an affinity group of more than 150 volunteer organizations in the United States that provide a wide variety of free services to the terminally ill, their families, and those who are grieving. Our members include volunteer hospices, grief support programs, and many other volunteer groups that care for the dying whether or not they are called "hospice". 
     


  • Widowed Persons Service 

  • 4211 Clyde Park SW, Suite C, Wyoming, MI 49509 
    (616) 538-0101 
    WPS is a self-help support group for men and women who have experienced the loss of a spouse through death. They offer daytime and evening support group meetings, seminars, social activities and public education of the widowed experience. They have a directory of the 270 programs across the country and can refer you to one in your area. They have two excellent videos on the widowed experience that many hospices have purchased. 
  • WidowNet

  • WidowNet is an information and self-help resource for, and by, widows and widowers. 
     
  • William Wendt Center for Loss and Healing 

  • 730 11th Street, NW, 3rd Floor, Washington, DC 20001 
    202-624-0010 
    The William Wendt Center for Loss (non-sectarian) specializes in support to people affected by all types of illness, loss, and grief. Services include counseling for adults and children; grief awareness programs for schools, work places, and religious institutions; education/training for mental health and health professionals in clinical applications of loss; and a volunteer program offering emotional and practical support for those living with illness, loss, or grief. 

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